Perception of Social Support and Psychological WellBeing of Parents of Children with Autism – the Mediating Role of Coping Style
Abstract
Parents of children with autism experience many difficulties related to the care and upbringing of their chilren on a daily basis. As shown by numerous studies, they experience high stress and their well-being is reduced. The subject of the study was the relationship between the perception of support, coping and well-being. In this relationship, it was checked whether the styles of coping with stress are a mediator between the perception of support and psychological well-being. The study involved 217 parents of children with autism. The results showed that the mediating role in the analyzed system is played by the style of coping with stress focused on the task and on emotions. A higher level of social support increases concentration on the task and reduces the tendency to excessively focus on one’s own emotions, thus resulting into higher well-being. The results allowed for a better understanding of the relationship between social support and well-being, showing that it is not just a simple relationship. Support could effectively improve the quality of life of parents if it affects their more adaptive coping with the stress they experience. The research may be a starting point for further considerations on the well-being of parents of children with autism and its determinants. This may be the basis for providing more effective help to this group.
Keywords
parents of children with autism; well-being; social support; coping with stress
References
[1] American Psychiatric Association, 2013, Diagnostic and Statistical Manual of Mental Disorders, Arlington, VA: APA.
[2] Argyle M., 2004, Przyczyny i korelaty szczęścia, [w:] Psychologia pozytywna. Nauka o szczęściu, zdrowiu, sile i cnotach człowieka, (red.) J. Czapiński, PWN, Warszawa.
[3] Baker-Ericzen M.J., Brookman-Frazee L., Stahmer A., 2005, Stress Levels and Adaptability in Parents of Toddlers With and Without Autism Spectrum Disorders, „Research and Practice for Persons with Severe Disabilities”, 30(4), 194–204. http://doi.org/10.2511/rpsd.30.4.194.
[4] Beidel D.C., Rao P.A., 2009, The Impact of Children With High-Functioning Autism on Parental Stress, Sibling Adjustment, and Family Functioning, „Behavior Modification”, July. http://doi.org/10.1177/0145445509336427.
[5] Benson P.R., 2012, Network Characteristics, Perceived Social Support, and Psychological Adjustment in Mothers of Children With Autism Spectrum Disorder, „Journal of Autism and Developmental Disorders”, 42, 2597–2610.
[6] Benson P.R., 2014, Coping and Psychological Adjustment Among Mothers of Children with ASD : An Accelerated Longitudinal Study, „Journal of Autism and Developmental Disorders”, March. http://doi.org/10.1007/s10803-014-2079-9.
[7] Brysor S.E., Clarc B.S., Smith T.M., 1988, First Report of Canadian Epidemiological Study of Autistic Syndromes, „Journal of Child Psychology and Psychiatry”, 29, 433–445.
[8] Bujnowska A.M., Rodrigues C., Garcia T., Areces D., Marsh N.V., 2019, Parenting and Future Anxiety : The Impact of Having a Child with Developmental Disabilities, „International Journal of Environental Research and Public Health”, 1–16. http://doi.org/org/10.3390/ijerph16040668.
[9] Cobb S., 1976, Social Support as a Moderator of Life Stress, „Psychosomatic Medicine”, 38(5), 300–314.
[10] Cohen S., Wills T.A., 1985, Stress, Social Support, and the Buffering Hypothesis, „Psychological Bulletin”, 98(2), 310.
[11] Cox C.R., Eaton S., Ekas N.V., Van Enkevort E.A., 2015, Research in Developmental Disabilities Death Concerns and Psychological Well-Being in Mothers of Children With Autism Spectrum Disorder, „Research in Developmental Disabilities”, 45–46, 229– 238. http://doi.org/10.1016/j.ridd.2015.07.029.
[12] Czapiński J., 2004a, Spotkanie dwóch tradycji: hedonizmu i eudajmonizmu, [w:] Psychologia pozytywna. Nauka o szczęściu, zdrowiu, sile i cnotach człowieka, (red.) J. Czapiński, Warszawa: Wydawnictwo Naukowe PWN, 13–17.
[13] Czapiński J., 2004b, Psychologiczne teorie szczęścia, [w:] Psychologia pozytywna. Nauka o szczęściu, zdrowiu, sile i cnotach człowieka, (red.) J. Czapiński, Warszawa: Wydawnictwo Naukowe PWN, 51–102.
[14] Czenczek E., Szeliga E., Przygoda Ł., 2012, Jakość życia rodziców dzieci autystycznych, „Przegląd Medyczny Uniwersytetu Rzeszowskiego i Narodowego Instytutu Leków w Warszawie”, 446–454.
[15] Dąbrowska A., Pisula E., 2010, Parenting Stress and Coping Styles in Mothers and Fathers of Pre-School Children With Autism and Down Syndrome, „Journal of Intellectual Disability Research”, 54(3), 266–280. http://doi.org/10.1111/j.1365-2788.2010.01258.x.
[16] Diener E., Suh E., Oishi S., 1997, Recent Findings on Subjective Well-Being, „Indian Journal of Clinical Psychology”.
[17] Endler N.S., Parker J.D.A., 1990, Coping Inventory for Stressful Situation. Manual. Multi-Health Systems, Toronto.
[18] Farmer C.A., Aman M.G., 2011, Aggressive Behavior in a Sample of Children With Autism Spectrum Disorders, „Research in Autism Spectrum Disorders”, 5, 317–323.
[19] Folkman S., 1997, Positive Psychological States and Coping With Severe Stress, „Social Science and Medicine” 45(8), 1207–1221.
[20] Folkman S., Lazarus R.S., 1988, Coping as a Mediator of Emotion, „Journal of Personality and Social Psychology”, 54, 466–475.
[21] Frantz R., Hansen S.G., Machalicek W., 2017, Interventions to Promote Well-Being in Parents of Children with Autism: a Systematic Review, „Autism Dev Disorder”, March 2018. http://doi.org/10.1007/s40489-017-0123-3.
[22] Gray D.E., 2002, ‘Everybody Just Freezes. Everybody is Just Embarrassed’: Felt and Enacted Stigma Among Parents of Children With High Functioning Autism, „Sociology of Health and Illness”, 24(6), 734–749.
[23] Hall H.R., Graff J.C., 2011, The Relationships Among Adaptive Behaviors of Children With Autism, Family Support, Parenting Stress, and Coping, „Issues in Comprehensive Pediatric Nursing”, 34(1), 4–25. http://doi.org/10.3109/01460862.2011.555270.
[24] Hastings R.P., Kovshoff H., Ward N.J., Degli Espinosa F., Brown T., Remington B., 2005, Systems Analysis of Stress and Positive Perceptions in Mothers and Fathers of Pre-School Children With Autism, „Journal of Autism and Developmental Disorders”, 35(5), 635–644.
[25] Heszen I., 2013, Psychologia stresu, Warszawa: Wydawnictwo Naukowe PWN.
[26] Heszen-Niejodek I., 1997, Psychologia zdrowia, Warszawa: Wydawnictwo Naukowe PWN.
[27] Heszen-Niejodek I., 2000, Człowiek w sytuacji stresu, Katowice: Wydawnictwo Uniwersytetu Śląskiego.
[28] Heszen-Niejodek I., 2007, Teoria stresu psychologicznego i radzenia sobie, [w:] Psychologia Podręcznik Akademicki, t. 3, (red.) J. Strelau, Gdańsk: Gdańskie Wydawnictwo Psychologiczne, 465–492.
[29] Izdebska I., 2000, Dziecko w rodzinie u progu XXI wieku, Białystok: Wydawnictwo Trans Humana.
[30] Jiang Z., Wang Z., Jing X., Wallace R., Jiang X., Kim D., 2017, Core Self-Evaluation :Linking Career Social Support to Life Satisfaction. „Personality and Individual Differences”, 112 (March), 128–135. http://doi.org/10.1016/j.paid.2017.02.070.
[31] Karaś D., Cieciuch J., 2017, Polska adaptacja kwestionariusza dobrostanu (psychological well- being scales) Caroll Ryff, „Roczniki Psychologiczne”, 1(4), 815–835.
[32] Karaś D., Cieciuch, J., 2019, Polska adaptacja kwestionariusza dobrostanu (psychological well-being scales) Caroll Ryff, „Roczniki Psychologiczne”, 20(4), 815–835.
[33] Konstantarcas M. M., 1991, Autistic, Learning Disabled and Delayed Children’s Impact on their Parents, „Canadian Journal of Behaviour Science”, 23(3), 358–375.
[34] Konstantareas M., Homatidis S., 1989, Assessing Child Symptom Severity and Stress in Parents of Autistic Children, „Journal of Child Psychology and Psychiatry and Allied Disciplines”, 30, 459–470.
[35] Landon J., Shepherd D., Goedeke S., 2018, Predictors of Satisfaction with Life in Parents of Children with Autism Spectrum Disorder, „Journal of Autism and Developmental Disorders”, 1640–1650.
[36] Lazarus R.S., 1993, Coping Theory and Research?: Past, Present, and Future, „Psychosomatic Medicine”, 247, 234–247.
[37] Lazarus R.S., Folkman S., 1984, Stress, Appraisal, and Coping, New York: Springer.
[38] Lee G.K., 2009, Parents of Children with High Functioning Autism: How Well Do They Cope and Adjust ?, 93–114. http://doi.org/10.1007/s10882-008-9128-2.
[39] Liu W., Li Z., Ling Y., Cai T., 2016, Core Self-Evaluations and Coping Styles as Mediators Between Social Support and Well-Being. „PAID”, 88 (January), 35–39. http://doi.org/10.1016/j.paid.2015.08.044.
[40] Mackinnon D.P., Lockwood C.M., Williams J., 2004, Confidence Limits for the Indirect Effect: Distribution of the Product and Resampling Methods, National Library of Medicine, 39(1), 1–24.
[41] Maenner M.J., Warren Z., Williams A.R. et al., 2023, Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years – Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020. MMWR Surveill Summ 2023;72 (No. SS-2):1-14. http://doi.org/10.15585/mmwr.ss7202a1.
[42] Manning M.M., Wainwright L., Bennett J., 2011, The Double ABCX Model of Adaptation in Racially Diverse Families With a School-Age Child With Autism, „Journal of Autism and Developmental Disorders”, 41(3), 320–331.
[43] Margaret B., Searing J., 2015, Support Needs of Families Living with Children with Autism Spectrum Disorder, „Journal of Autism and Developmental Disorders”, 45(11), 3693–3702. http://doi.org/10.1007/s10803-015-2516-4.
[44] Marsack C.N., Samuel P.S., 2017, Mediating Effects of Social Support on Quality of Life for Parents of Adults with Autism, „Journal of Autism & Developmental Disorders”, 2378–2389. http://doi.org/10.1007/s10803-017-3157-6.
[45] McStay R.L., Trembath D., Dissanayake C., 2014, Stress and Family Quality of Life in Parents of Children with Autism Spectrum Disorder: Parent Gender and the Double ABCX Model, „Journal of Autism and Developmental Disorders”, 44(12), 3101–3118. http://doi.org/10.1007/s10803-014-2178-7.
[46] Minczakiewicz E., 2002, Wsparcie społeczne rodziny jako czynnik modelujący i kształtujący więzi w rodzinie wychowującej dziecko z głębszą niepełnosprawnością intelektualną, „Roczniki Pedagogiki Specjalnej”, 12/13.
[47] Nami M., Kiani B., 2017, A Comparative Analysis on Psychological Well-Being in Mothers of Autistic, Blind, and Normal-Functioning Children, „Psychology & Neuroscience”, 10(1), 83–90.
[48] Nowakowski M., 2004, Pojęcie wsparcia społecznego i problemy jego pomiaru ze szczególnym uwzględnieniem populacji seniorów, Lublin, 292–300.
[49] Pastor-Ceruzuela G., Fernandez I., Tarraga-Minguez R., 2015, Parental Stress and ASD : Relationship With Autism Symptom Severity, IQ, and Resilience, „Focus on Autism and Other Developmental Disabilities”, December. http://doi.org/10.1177/108835761558347.
[50] Pisula E., 1988, Psychologiczne problemy rodziców dzieci z zaburzeniami rozwoju, Warszawa: Wydawnictwo Uniwersytetu Warszawskiego.
[51] Pisula E., Mazur A., 2007, Jak matki spostrzegają swoje dzieci z autyzmem? Jakościowa analiza wypowiedzi matek, [w:] Rodzina z dzieckiem z niepełnosprawnością, (red.) E. Pisula, D. Danielewicz, Gdańsk: Wydawnictwo Harmonia, s. 49–72.
[52] Pisula E., Ziegart-Sadowska K., 2015, Broader Autism Phenotype in Siblings of Children with ASD — A Review. http://doi.org/10.3390/ijms160613217.
[53] Polski Instytut Ekonomiczny, Fundacja JiM, 2022, Droga do otwarcia rynku pracy w Polsce dla osób autystycznych, Warszawa, https://odpowiedzialnybiznes. pl/wpcontent/uploads/2022/03/Autyzm... [dostęp: 2.02.2025].
[54] Pozo P., Sarriá E., Brioso A., 2014, Family Quality of Life and Psychological Well- Being in Parents of Children With Autism Spectrum Disorders: A Double ABCX Model, „Journal of Intellectual Disability Research”, 58(5), 442–458. http://doi.org/10.1111/jir.12042.
[55] Preacher K.J., Hayes A.F., 2004, SPSS and SAS Procedures for Estimating Indirect Effects in Simple Mediation Models, „Behavior Research Methods”, 36(4), 717–731.
[56] Przybyła-Basista H., Buszman K.A., 2017, Polska adaptacja wielowymiarowej skali spostrzeganego wsparcia społecznego, „Polskie Forum Psychologiczne”, 4.
[57] Ryff C.D., 1989, Happiness is Everything, or is it?, „Journal of Personality and Social Psychology”, 57(6), 1069–1081. http://doi.org/10.1037/034645.
[58] Ryff C.D., Keyes C.L., 1995, The Structure of Psychological Well-Being Revisited, „Journal of Personality and Social Psychology”, 69(4), 719–727. http://doi.org/10.1037/0022-3514.69.4.719.
[59] Sarason I.G., 1980, Life Stress, Self-Preoccupation and Social Support, [w:] Stress and Anxiety, (red.) I. G. Sarason, C. D. Spielberger, Washington: Hemisphere, 73–92.
[60] Schroeder S., Schmidt B., 1987, Soziale Unterstuzung, [w:] Theorien und Methoden der Bewaltigungsforschung, (red.) L. Bruderl, Muenchen, Juventa, 149–159.
[61] Sekułowicz M., 2000, Matki dzieci niepełnosprawnych wobec problemów życiowych, Wrocław: Wydawnictwo Uniwersytetu Wrocławskiego.
[62] Seltzer M.M., Greenberg J.S., Hong J., Smith L.E., Almeida D.M., Coe C., Stawski R.S., 2010, Maternal Cortisol Levels and Behavior Problems in Adolescents and Adults with ASD, „Autism Dev Disorder”, 40(4), 457–469. http://doi.org/10.1007/s10803-009-0887-0.Maternal.
[63] Sivberg B., 2016, Family System and Coping Behaviors : A Comparison Between Parents of Children With Autistic Spectrum Disorders and Parents With Non-Autistic Children, January 2003. http://doi.org/10.1177/1362361302006004006.
[64] Tomczak K., 2009, Style radzenia sobie w sytuacji stresowej, przekonanie o własnej skuteczności, nadzieja na sukces u studentów rozpoczynających i kończących studia, „Psychoterapia”, 2(149), 67–79.
[65] Wang P., Michaels C.A., Day M.S., 2011, Stresses and Coping Strategies of Chinese Families with Children with Autism and Other Developmental Disabilities, „Journal of Autism & Developmental Disorders”, 783–795. http://doi.org/10.1007/s10803-010-1099-3.
[66] Wei W., Tze L., Goh J., Oei T.P.S., Sung M., 2015, Coping and Well-Being in Parents of Children with Autism Spectrum Disorders (ASD), „Journal of Autism and Developmental Disorders”, 2582–2593. http://doi.org/10.1007/s10803-015-2430-9.
[67] Woodgate R.L., 2008, Living in a World of Our Own : The Experience of Parents Who Have a Child With Autism. May 2014. https://doi.org/10.1177/1049732308320112.
[68] Wrześniewski K., 2000, Style a strategie radzenia sobie ze stresem. Problemy pomiaru, [w:] Człowiek w sytuacji stresu, (red.) I. Heszen-Niejodek, Z. Ratajczak, Wrocław: Wydawnictwo Uniwersytetu Śląskiego, 12–43.
[69] Zaidman A., Pat Z., Peter M., Eric S., Isabel D., Tracy M.S., Volden J., Waddell C., Bennett T., Zwaigenbaum L., Elsabaggh M., 2018, Profiles of Social and Coping Resources in Families of Children with Autism Spectrum Disorder : Relations to Parent and Child Outcomes, „Journal of Autism and Developmental Disorders”, 2064–2076.
[70] Zimet Gregory D. et al., 1988, The Multidimensional Scale of Perceived Social Support, „Journal of Personality Assessment”, 52, 30–41. http://doi.org/10.1080/00223891.1990.9674095.
[2] Argyle M., 2004, Przyczyny i korelaty szczęścia, [w:] Psychologia pozytywna. Nauka o szczęściu, zdrowiu, sile i cnotach człowieka, (red.) J. Czapiński, PWN, Warszawa.
[3] Baker-Ericzen M.J., Brookman-Frazee L., Stahmer A., 2005, Stress Levels and Adaptability in Parents of Toddlers With and Without Autism Spectrum Disorders, „Research and Practice for Persons with Severe Disabilities”, 30(4), 194–204. http://doi.org/10.2511/rpsd.30.4.194.
[4] Beidel D.C., Rao P.A., 2009, The Impact of Children With High-Functioning Autism on Parental Stress, Sibling Adjustment, and Family Functioning, „Behavior Modification”, July. http://doi.org/10.1177/0145445509336427.
[5] Benson P.R., 2012, Network Characteristics, Perceived Social Support, and Psychological Adjustment in Mothers of Children With Autism Spectrum Disorder, „Journal of Autism and Developmental Disorders”, 42, 2597–2610.
[6] Benson P.R., 2014, Coping and Psychological Adjustment Among Mothers of Children with ASD : An Accelerated Longitudinal Study, „Journal of Autism and Developmental Disorders”, March. http://doi.org/10.1007/s10803-014-2079-9.
[7] Brysor S.E., Clarc B.S., Smith T.M., 1988, First Report of Canadian Epidemiological Study of Autistic Syndromes, „Journal of Child Psychology and Psychiatry”, 29, 433–445.
[8] Bujnowska A.M., Rodrigues C., Garcia T., Areces D., Marsh N.V., 2019, Parenting and Future Anxiety : The Impact of Having a Child with Developmental Disabilities, „International Journal of Environental Research and Public Health”, 1–16. http://doi.org/org/10.3390/ijerph16040668.
[9] Cobb S., 1976, Social Support as a Moderator of Life Stress, „Psychosomatic Medicine”, 38(5), 300–314.
[10] Cohen S., Wills T.A., 1985, Stress, Social Support, and the Buffering Hypothesis, „Psychological Bulletin”, 98(2), 310.
[11] Cox C.R., Eaton S., Ekas N.V., Van Enkevort E.A., 2015, Research in Developmental Disabilities Death Concerns and Psychological Well-Being in Mothers of Children With Autism Spectrum Disorder, „Research in Developmental Disabilities”, 45–46, 229– 238. http://doi.org/10.1016/j.ridd.2015.07.029.
[12] Czapiński J., 2004a, Spotkanie dwóch tradycji: hedonizmu i eudajmonizmu, [w:] Psychologia pozytywna. Nauka o szczęściu, zdrowiu, sile i cnotach człowieka, (red.) J. Czapiński, Warszawa: Wydawnictwo Naukowe PWN, 13–17.
[13] Czapiński J., 2004b, Psychologiczne teorie szczęścia, [w:] Psychologia pozytywna. Nauka o szczęściu, zdrowiu, sile i cnotach człowieka, (red.) J. Czapiński, Warszawa: Wydawnictwo Naukowe PWN, 51–102.
[14] Czenczek E., Szeliga E., Przygoda Ł., 2012, Jakość życia rodziców dzieci autystycznych, „Przegląd Medyczny Uniwersytetu Rzeszowskiego i Narodowego Instytutu Leków w Warszawie”, 446–454.
[15] Dąbrowska A., Pisula E., 2010, Parenting Stress and Coping Styles in Mothers and Fathers of Pre-School Children With Autism and Down Syndrome, „Journal of Intellectual Disability Research”, 54(3), 266–280. http://doi.org/10.1111/j.1365-2788.2010.01258.x.
[16] Diener E., Suh E., Oishi S., 1997, Recent Findings on Subjective Well-Being, „Indian Journal of Clinical Psychology”.
[17] Endler N.S., Parker J.D.A., 1990, Coping Inventory for Stressful Situation. Manual. Multi-Health Systems, Toronto.
[18] Farmer C.A., Aman M.G., 2011, Aggressive Behavior in a Sample of Children With Autism Spectrum Disorders, „Research in Autism Spectrum Disorders”, 5, 317–323.
[19] Folkman S., 1997, Positive Psychological States and Coping With Severe Stress, „Social Science and Medicine” 45(8), 1207–1221.
[20] Folkman S., Lazarus R.S., 1988, Coping as a Mediator of Emotion, „Journal of Personality and Social Psychology”, 54, 466–475.
[21] Frantz R., Hansen S.G., Machalicek W., 2017, Interventions to Promote Well-Being in Parents of Children with Autism: a Systematic Review, „Autism Dev Disorder”, March 2018. http://doi.org/10.1007/s40489-017-0123-3.
[22] Gray D.E., 2002, ‘Everybody Just Freezes. Everybody is Just Embarrassed’: Felt and Enacted Stigma Among Parents of Children With High Functioning Autism, „Sociology of Health and Illness”, 24(6), 734–749.
[23] Hall H.R., Graff J.C., 2011, The Relationships Among Adaptive Behaviors of Children With Autism, Family Support, Parenting Stress, and Coping, „Issues in Comprehensive Pediatric Nursing”, 34(1), 4–25. http://doi.org/10.3109/01460862.2011.555270.
[24] Hastings R.P., Kovshoff H., Ward N.J., Degli Espinosa F., Brown T., Remington B., 2005, Systems Analysis of Stress and Positive Perceptions in Mothers and Fathers of Pre-School Children With Autism, „Journal of Autism and Developmental Disorders”, 35(5), 635–644.
[25] Heszen I., 2013, Psychologia stresu, Warszawa: Wydawnictwo Naukowe PWN.
[26] Heszen-Niejodek I., 1997, Psychologia zdrowia, Warszawa: Wydawnictwo Naukowe PWN.
[27] Heszen-Niejodek I., 2000, Człowiek w sytuacji stresu, Katowice: Wydawnictwo Uniwersytetu Śląskiego.
[28] Heszen-Niejodek I., 2007, Teoria stresu psychologicznego i radzenia sobie, [w:] Psychologia Podręcznik Akademicki, t. 3, (red.) J. Strelau, Gdańsk: Gdańskie Wydawnictwo Psychologiczne, 465–492.
[29] Izdebska I., 2000, Dziecko w rodzinie u progu XXI wieku, Białystok: Wydawnictwo Trans Humana.
[30] Jiang Z., Wang Z., Jing X., Wallace R., Jiang X., Kim D., 2017, Core Self-Evaluation :Linking Career Social Support to Life Satisfaction. „Personality and Individual Differences”, 112 (March), 128–135. http://doi.org/10.1016/j.paid.2017.02.070.
[31] Karaś D., Cieciuch J., 2017, Polska adaptacja kwestionariusza dobrostanu (psychological well- being scales) Caroll Ryff, „Roczniki Psychologiczne”, 1(4), 815–835.
[32] Karaś D., Cieciuch, J., 2019, Polska adaptacja kwestionariusza dobrostanu (psychological well-being scales) Caroll Ryff, „Roczniki Psychologiczne”, 20(4), 815–835.
[33] Konstantarcas M. M., 1991, Autistic, Learning Disabled and Delayed Children’s Impact on their Parents, „Canadian Journal of Behaviour Science”, 23(3), 358–375.
[34] Konstantareas M., Homatidis S., 1989, Assessing Child Symptom Severity and Stress in Parents of Autistic Children, „Journal of Child Psychology and Psychiatry and Allied Disciplines”, 30, 459–470.
[35] Landon J., Shepherd D., Goedeke S., 2018, Predictors of Satisfaction with Life in Parents of Children with Autism Spectrum Disorder, „Journal of Autism and Developmental Disorders”, 1640–1650.
[36] Lazarus R.S., 1993, Coping Theory and Research?: Past, Present, and Future, „Psychosomatic Medicine”, 247, 234–247.
[37] Lazarus R.S., Folkman S., 1984, Stress, Appraisal, and Coping, New York: Springer.
[38] Lee G.K., 2009, Parents of Children with High Functioning Autism: How Well Do They Cope and Adjust ?, 93–114. http://doi.org/10.1007/s10882-008-9128-2.
[39] Liu W., Li Z., Ling Y., Cai T., 2016, Core Self-Evaluations and Coping Styles as Mediators Between Social Support and Well-Being. „PAID”, 88 (January), 35–39. http://doi.org/10.1016/j.paid.2015.08.044.
[40] Mackinnon D.P., Lockwood C.M., Williams J., 2004, Confidence Limits for the Indirect Effect: Distribution of the Product and Resampling Methods, National Library of Medicine, 39(1), 1–24.
[41] Maenner M.J., Warren Z., Williams A.R. et al., 2023, Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years – Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020. MMWR Surveill Summ 2023;72 (No. SS-2):1-14. http://doi.org/10.15585/mmwr.ss7202a1.
[42] Manning M.M., Wainwright L., Bennett J., 2011, The Double ABCX Model of Adaptation in Racially Diverse Families With a School-Age Child With Autism, „Journal of Autism and Developmental Disorders”, 41(3), 320–331.
[43] Margaret B., Searing J., 2015, Support Needs of Families Living with Children with Autism Spectrum Disorder, „Journal of Autism and Developmental Disorders”, 45(11), 3693–3702. http://doi.org/10.1007/s10803-015-2516-4.
[44] Marsack C.N., Samuel P.S., 2017, Mediating Effects of Social Support on Quality of Life for Parents of Adults with Autism, „Journal of Autism & Developmental Disorders”, 2378–2389. http://doi.org/10.1007/s10803-017-3157-6.
[45] McStay R.L., Trembath D., Dissanayake C., 2014, Stress and Family Quality of Life in Parents of Children with Autism Spectrum Disorder: Parent Gender and the Double ABCX Model, „Journal of Autism and Developmental Disorders”, 44(12), 3101–3118. http://doi.org/10.1007/s10803-014-2178-7.
[46] Minczakiewicz E., 2002, Wsparcie społeczne rodziny jako czynnik modelujący i kształtujący więzi w rodzinie wychowującej dziecko z głębszą niepełnosprawnością intelektualną, „Roczniki Pedagogiki Specjalnej”, 12/13.
[47] Nami M., Kiani B., 2017, A Comparative Analysis on Psychological Well-Being in Mothers of Autistic, Blind, and Normal-Functioning Children, „Psychology & Neuroscience”, 10(1), 83–90.
[48] Nowakowski M., 2004, Pojęcie wsparcia społecznego i problemy jego pomiaru ze szczególnym uwzględnieniem populacji seniorów, Lublin, 292–300.
[49] Pastor-Ceruzuela G., Fernandez I., Tarraga-Minguez R., 2015, Parental Stress and ASD : Relationship With Autism Symptom Severity, IQ, and Resilience, „Focus on Autism and Other Developmental Disabilities”, December. http://doi.org/10.1177/108835761558347.
[50] Pisula E., 1988, Psychologiczne problemy rodziców dzieci z zaburzeniami rozwoju, Warszawa: Wydawnictwo Uniwersytetu Warszawskiego.
[51] Pisula E., Mazur A., 2007, Jak matki spostrzegają swoje dzieci z autyzmem? Jakościowa analiza wypowiedzi matek, [w:] Rodzina z dzieckiem z niepełnosprawnością, (red.) E. Pisula, D. Danielewicz, Gdańsk: Wydawnictwo Harmonia, s. 49–72.
[52] Pisula E., Ziegart-Sadowska K., 2015, Broader Autism Phenotype in Siblings of Children with ASD — A Review. http://doi.org/10.3390/ijms160613217.
[53] Polski Instytut Ekonomiczny, Fundacja JiM, 2022, Droga do otwarcia rynku pracy w Polsce dla osób autystycznych, Warszawa, https://odpowiedzialnybiznes. pl/wpcontent/uploads/2022/03/Autyzm... [dostęp: 2.02.2025].
[54] Pozo P., Sarriá E., Brioso A., 2014, Family Quality of Life and Psychological Well- Being in Parents of Children With Autism Spectrum Disorders: A Double ABCX Model, „Journal of Intellectual Disability Research”, 58(5), 442–458. http://doi.org/10.1111/jir.12042.
[55] Preacher K.J., Hayes A.F., 2004, SPSS and SAS Procedures for Estimating Indirect Effects in Simple Mediation Models, „Behavior Research Methods”, 36(4), 717–731.
[56] Przybyła-Basista H., Buszman K.A., 2017, Polska adaptacja wielowymiarowej skali spostrzeganego wsparcia społecznego, „Polskie Forum Psychologiczne”, 4.
[57] Ryff C.D., 1989, Happiness is Everything, or is it?, „Journal of Personality and Social Psychology”, 57(6), 1069–1081. http://doi.org/10.1037/034645.
[58] Ryff C.D., Keyes C.L., 1995, The Structure of Psychological Well-Being Revisited, „Journal of Personality and Social Psychology”, 69(4), 719–727. http://doi.org/10.1037/0022-3514.69.4.719.
[59] Sarason I.G., 1980, Life Stress, Self-Preoccupation and Social Support, [w:] Stress and Anxiety, (red.) I. G. Sarason, C. D. Spielberger, Washington: Hemisphere, 73–92.
[60] Schroeder S., Schmidt B., 1987, Soziale Unterstuzung, [w:] Theorien und Methoden der Bewaltigungsforschung, (red.) L. Bruderl, Muenchen, Juventa, 149–159.
[61] Sekułowicz M., 2000, Matki dzieci niepełnosprawnych wobec problemów życiowych, Wrocław: Wydawnictwo Uniwersytetu Wrocławskiego.
[62] Seltzer M.M., Greenberg J.S., Hong J., Smith L.E., Almeida D.M., Coe C., Stawski R.S., 2010, Maternal Cortisol Levels and Behavior Problems in Adolescents and Adults with ASD, „Autism Dev Disorder”, 40(4), 457–469. http://doi.org/10.1007/s10803-009-0887-0.Maternal.
[63] Sivberg B., 2016, Family System and Coping Behaviors : A Comparison Between Parents of Children With Autistic Spectrum Disorders and Parents With Non-Autistic Children, January 2003. http://doi.org/10.1177/1362361302006004006.
[64] Tomczak K., 2009, Style radzenia sobie w sytuacji stresowej, przekonanie o własnej skuteczności, nadzieja na sukces u studentów rozpoczynających i kończących studia, „Psychoterapia”, 2(149), 67–79.
[65] Wang P., Michaels C.A., Day M.S., 2011, Stresses and Coping Strategies of Chinese Families with Children with Autism and Other Developmental Disabilities, „Journal of Autism & Developmental Disorders”, 783–795. http://doi.org/10.1007/s10803-010-1099-3.
[66] Wei W., Tze L., Goh J., Oei T.P.S., Sung M., 2015, Coping and Well-Being in Parents of Children with Autism Spectrum Disorders (ASD), „Journal of Autism and Developmental Disorders”, 2582–2593. http://doi.org/10.1007/s10803-015-2430-9.
[67] Woodgate R.L., 2008, Living in a World of Our Own : The Experience of Parents Who Have a Child With Autism. May 2014. https://doi.org/10.1177/1049732308320112.
[68] Wrześniewski K., 2000, Style a strategie radzenia sobie ze stresem. Problemy pomiaru, [w:] Człowiek w sytuacji stresu, (red.) I. Heszen-Niejodek, Z. Ratajczak, Wrocław: Wydawnictwo Uniwersytetu Śląskiego, 12–43.
[69] Zaidman A., Pat Z., Peter M., Eric S., Isabel D., Tracy M.S., Volden J., Waddell C., Bennett T., Zwaigenbaum L., Elsabaggh M., 2018, Profiles of Social and Coping Resources in Families of Children with Autism Spectrum Disorder : Relations to Parent and Child Outcomes, „Journal of Autism and Developmental Disorders”, 2064–2076.
[70] Zimet Gregory D. et al., 1988, The Multidimensional Scale of Perceived Social Support, „Journal of Personality Assessment”, 52, 30–41. http://doi.org/10.1080/00223891.1990.9674095.
Bałakier, E. (2024). Perception of Social Support and Psychological WellBeing of Parents of Children with Autism – the Mediating Role of Coping Style. Resocjalizacja Polska, (28), 97–115. https://doi.org/10.22432/pjsr.2024.28.06
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